Monday, April 30, 2012

It's the end of the world as we know it...


Flashback: July 2009

 Daddy and I had one to the eye glasses store to get an exam and pick up some new contacts for me / glasses for him. He's always prided himself on his 20/20 vision, but recently the dollar store readers just weren't cutting it. As we're filling out the mandatory forms, I notice my daddy is going really slow and seems a bit confused while filling in his answers. I made a mental note to myself: "One day I'll have to take care of my daddy" He was 55 years old.

Over the next year and 3 months, daddy got into 2 wrecks: one of which he had no idea what happened. Would increasingly get frustrated at ATMs, fastfood and store cashiers (he couldn't work the card machines). He refused to use one gas station, insisting that they would not let you buy gas. We thought maybe it was because he'd been working the night shift. During the summer of 2010, the Dr. gave my dad some meds to help: uppers & downers. Physically he looked better, but the confusion remained.

It hits the fan: Halloween weekend 2010

 My mother in law was moving into our house and daddy helped by driving the moving van. He'd been taking a lot of vacation lately, but since he had a good bit we weren't too concerned. While packing up my Mil's house - my dad was acting a bit out of it. I overheard him on a phone call with a work buddy and could tell something was up at work. We asked daddy what was going on and he said he couldn't remember if he requested the time off he'd been taking.
While making the 2 and a half hour drive from my mil's house to mine, my daddy followed the car I was driving. Once we arrived he let us know that if he had not been watching my car he doesn't know if he would have made it home. That was the last day he drove.

He went back to the Dr. Then off to the Neurologist. Finally a Neuro Psychologist for testing.
The neuro psychologist told my dad if he didn't know better he would have thought daddy was trying to fail the testing in order to get on disability. This didn't sit too well with daddy as he's the hardest working man I know. A few weeks later I read the report from the testing. Going over new words I'd never heard. Aphasia, FTD, Pick's disease, Alzheimer's was the only word I had previously known. So I did what I do.. research. Well after reading about FTD I thought, that's it, that's what my dad has. I was the first one to diagnose my daddy. The other Drs. just said he had early onset Alzheimer's. Since he was so young we went to get a second opinion. On February 2011 he was officially diagnosed with FTD. Thankfully his new Dr. was a specialist in FTD.

Check up: March 2012

 During that first year mama and I worked hard to put affairs in order. Daddy carries around a small amount of cash, mostly so he can buy the grandkids snacks. At his check up the initial report was he had declined 50%, but after hearing the ways in which he is high functioning his scores were padded a bit. As of today he's attending adult facilities 2-3 times a week.

2 comments:

  1. Hi Don's Daughter

    My mother has recently been diagnosed with FTD. She's in the moderate to early-advanced stages as she wasn't diagnosed until January of this year. I'm starting a blog myself & have the same thoughts that you do. Maybe other caregivers can connect & share advice, stories, and support. My mom is 58. She no longer drives, she goes to what my family lovingly calls 'dementia daycare' 3 days a week, needs help ordering at a resturant, has all of her food pre-perpared for her, and the list goes on and on. My aunt and I are her caregivers and we all live together. It's a whirlwind and everyday brings new challenges!!

    Stay strong and best wishes-
    AJ

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  2. This was similar to our experience. We knew something was "wrong" with my mom. We thought maybe brain damage (you can read about all that on my blog, it's a long story). But my sister and I were the ones to stumble onto frontotemporal lobe dementia. UCLA confirmed our fears. Like you, I researched everything I could on FTD. Not that I'm happy to see others going through this...but I am happy that I have found others who understand what we're going through!

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